For the past 4 years I have been spending the month of April writing about Autism. Our oldest daughter, Camryn Grace was diagnosed with Autism, a Moderate Intellectual Disability, and significant Fine and Gross Motor Delays. From 9 months old until Camryn was 10 years old, we saw countless doctors. We don’t see doctors anymore. She has enough acronyms to follow her name for now.
I started writing these posts on Facebook and then decided to turn this month of writing into a blog about Autism and so much more.
The “so much more” is so important because Camryn and our family are SO MUCH MORE than Autism. Autism doesn’t last a month, it’s a lifetime. If we could change it, we would. There are days that her sisters vocalize that they wish she didn’t have it. There are nights, after the tough days and after the kids have gone to bed, when Dave and I have the same sentiments. Sometimes I wonder what she would be like without it. Sometimes I wonder what it is like to have it. Sometimes I wonder if deep down inside, she sees her differences. These “sometimes” don’t happen as often as they did. They can’t. If we are SO MUCH MORE we can’t live in the sometimes.
I hope during this month, you laugh a little, cry a little, help us raise awareness by sharing our story and know that when the month is over, 1 in 68 children will not have a month, they too will have a lifetime.
It will be a lifetime of ups, downs, joy, tears, laughter, faith and lots of love. There is no cure for Autism. We can’t change it. But you know what we can do? Take the life that was specifically designed for us and live it fully. We only get one shot and we are committed to being the best parents we can be for Camryn and her sisters.
We try not to blame and make excuses. We advocate with respect for Camryn and the team of people who work with her. We listen to advice from the experts. We accept constructive criticism and we try so hard to parent with grace despite how broken we sometimes feel.
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