I guess people think that is a compliment, but imagine if I said that to you. Isn’t that a strange way to describe someone?

How a person looks has nothing to do with their disability.

Here are some things that are our normal that have nothing to do with outside appearances.

1. Dave or I have to fully shower Camryn. Dave and I share equal responsibility. He never complains, despite her becoming fully developed. It is difficult for me and I admire Dave so much for stepping in whenever he needs to.
2. Camryn doesn’t really care about Christmas or Birthday presents. She likes opening presents, but then rarely looks at them again. She does love the food associated with both holidays.
3. Camryn would go anywhere with a stranger.
4. Camryn would walk into the street without looking both ways.
5. Camryn can’t ride a bike, run or climb.
6. Camryn cries in public and people tend to stare.
7. If you are in a store and my family is there too you can hear Camryn yelling Brynlee through the store. She loves showing Brynlee anything and everything.
8. She has begun touching herself in public. She has no self-awareness when it comes to privacy.
9. I will always worry about Camryn’s future in a totally different way than the other girls. If I didn’t have a relationship with the Lord, this would rob me of my present joy.
10. Sometimes Camryn cries for long periods of time and we have no clue what she is crying about.
11. Camryn will not get her period. We will stop it. She would not be able to care for herself nor understand if she wasn’t able to swim because of her period.

This is our normal despite how things look or seem on the outside.

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11 Comments

  1. Liz Lippy on April 23, 2017 at 8:16 pm

    Love you girl! Love reading your posts. You were always special but seeing your life through the eyes of your blog is just precious. Thank you for sharing!



  2. Mom on April 23, 2017 at 9:25 pm

    I know all this, but to see it in print breaks my heart for my beautiful Camryn Grace. God love and keep her safe always. My heart breaks for you and Dave, too. You both deal with all this uncertainty and do it with love, humor and sometimes tears. Dad and I love you.



  3. Stacey on April 23, 2017 at 9:37 pm

    You guys are all amazing & seem to triumph through all of your challenges & difficult times! We love you guys!
    ❤️Stacey & Rob



  4. Kellyann Mitchell on April 24, 2017 at 6:02 am

    Thank you for sharing your normal with us. Love you all!!



  5. Kristi on April 24, 2017 at 8:41 am

    We love you too!!



  6. Kristi on April 24, 2017 at 8:42 am

    Thanks!! We love you too!!



  7. Kristi on April 24, 2017 at 8:45 am

    Thanks, Liz. ❤❤❤



  8. Julia Moskovitz on April 24, 2017 at 1:33 pm

    Thanks for sharing! Love everything you write…. And I Love how your marriage is strengthened because of Camryn. What a blessing in disguise! God knows what he’s doing.



  9. Lois King on April 24, 2017 at 4:23 pm

    I agree with your Mom. Seeing all of these strugles you go thru breaks my heart. You and Dave are such good parents and God will continue to be your strength. Camryn is a special angel that God knew you could take care of



  10. Kristi on April 24, 2017 at 6:06 pm

    I couldn’t agree more!! God has a plan!! ❤️❤️



  11. Kristi on April 24, 2017 at 6:07 pm

    God only gives you what HE can handle and he’s got this!! ❤️



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