I guess people think that is a compliment, but imagine if I said that to you. Isn’t that a strange way to describe someone?
How a person looks has nothing to do with their disability.
Here are some things that are our normal that have nothing to do with outside appearances.
1. Dave or I have to fully shower Camryn. Dave and I share equal responsibility. He never complains, despite her becoming fully developed. It is difficult for me and I admire Dave so much for stepping in whenever he needs to.
2. Camryn doesn’t really care about Christmas or Birthday presents. She likes opening presents, but then rarely looks at them again. She does love the food associated with both holidays.
3. Camryn would go anywhere with a stranger.
4. Camryn would walk into the street without looking both ways.
5. Camryn can’t ride a bike, run or climb.
6. Camryn cries in public and people tend to stare.
7. If you are in a store and my family is there too you can hear Camryn yelling Brynlee through the store. She loves showing Brynlee anything and everything.
8. She has begun touching herself in public. She has no self-awareness when it comes to privacy.
9. I will always worry about Camryn’s future in a totally different way than the other girls. If I didn’t have a relationship with the Lord, this would rob me of my present joy.
10. Sometimes Camryn cries for long periods of time and we have no clue what she is crying about.
11. Camryn will not get her period. We will stop it. She would not be able to care for herself nor understand if she wasn’t able to swim because of her period.
This is our normal despite how things look or seem on the outside.