Your daughter is not developing appropriately. Punch.
Your daughter needs PT. Punch.
We need to add OT. Punch.
We need to add Speech. Punch.
Your daughter has Global Developmental Delay. Punch.
Your daughter has Autism. Punch.
Your daughter needs ABA Therapy. Punch.
Your daughter has a ADHD. Punch.
Your daughter has a Mild Intellectual Disability. Punch.
Your daughter’s Intellectual Disability is now moderate instead of mild. Punch.
Your daughter would be more successful in a school for kids with Autism. Dreams shattered.
This has been a never ending struggle. We are fighting a disability, a diagnosis, a list of things she shouldn’t be able to do. We are never combating people. Everyone that loves Camryn feels the punches, but together we stand and together we keep fighting.
Because of the educators and therapists in Camryn’s lives she has made gigantic strides. Because I live with her, I don’t always see the gains, but I do see that Jesus is walking with Camryn every step of the way.
From the second Camryn entered Spring-Ford School District, she had a team of people fighting for her. The principal, guidance counselor, Autistic support teachers, therapists, aids, regular education teachers and supervisor of Special Education treated Camryn as if she were their own child. I would leave meetings and spend time in my car weighing every part of the meeting and replaying it as if it were a VCR tape on constant rewind. I would always cry not simply because of the situation, but because other people felt our pain and frustration with such plausible empathy. At every meeting I would sense that they wished they had better news to bear, but with kindness and compassion they would share with us that her progress was minimal. They were fighting for her relentlessly at school just like we were at home.
As a team we made the decision to send her to The Timothy School. I knew it was the perfect place for her, but it was so different than the future I longed for for Camryn. There were points in her younger years that I felt she would grow out of it. That was not God’s plan though, that was more my agenda. There were times that I didn’t want this situation, responsibility, and heartache.
The Timothy School has been an example of another path that Jesus has led Camryn down. The teachers and staff are there because they choose to be. It is a job that isn’t for everyone, but the people who work there help to put some of the puzzle pieces together for all of the students.
My dream for Camryn since her diagnosis of ID was that she would learn how to read. Spring-Ford teachers tried different curriculums, I tried different curriculums at home, but her progress has been very slow. Just last week I was so excited to show one of her home therapists that Aubrey and Courtney’s Kindergarten teacher sent packets home for Camryn too. As soon as the sentence left my mouth, I lost it. She is entering 7th grade, but working on Kindergarten work. That punch came out of no where.
But today we celebrated success. We celebrated strides, progress, hard work and dedication. During the awards ceremony at The Timothy School, Camryn was recognized with the Anne Wright Reading Award. This award is given to a middle school student who has shown the most progress in reading.
The most progress in reading!!! Anything is possible. Camryn is proof of that everyday. I think it is pretty amazing to live with someone who can remind me everyday that anything is possible. She achieved this goal because she is surrounded by people who want her to read and have the passion and drive to continue to push her despite how resistant she sometimes is.
Today I felt like THAT parent. The parent whose kid won an award at the end of the year. It was pretty cool to join the club. My girl is going to continue to amaze me and I will continue to celebrate every success and shout them from the rooftops.
We have leaned on the Lord and put Camryn in His hands. He has given her the ability to exceed expectations. Thank you Jesus for giving us one heck of a day.