I always feel so torn. Teaching Camryn to do things that typical children just pick up on is exhausting at times. I am frustrated that I still have to put her shoes on and tie them, giving her a shower is so difficult for me now because of her size, I watch her sisters as they cut their food while I am still cutting Camryn’s, the other girls are brushing their hair as I listen to Camryn cry as I brush hers. I watch my girls come out of their own rooms dressed as I head up to help Camryn make sure everything is facing the right way. I am not bitter, but I am human and sometimes the reality of the events in your life are difficult to swallow.
I want Camryn in the future to live as independently as possible. I envision her in an apartment, behind my house 😀 with a few roommates. I will never give up on the dream of her living as independently as possible. Incase you haven’t noticed yet, when I get something in my mind, my determination kicks in!!
In February a new team of therapists came into our lives and home for 15 hours a week, every week. This has rocked our world in so many ways. We have people in our house again all of the time, the girls are “stuck” home because of us needing to be present and the girls don’t remember what it is like to have adults in our home all of the time working with Camryn, so this has been an adjustment.
They handle it with such maturity. They know it is what their sister needs and they ARE her biggest fans. Plus they love the therapists just as much as Camryn does. We do too! Camryn works so hard at school and then returns home to work on the same skills. Could you imagine having to do that everyday? And she does it with such grace…I guess her name is Camryn Grace for a reason.
Despite all of changes that are taking place for all of us, I am seeing the most growth I have seen in years. I think these women were just another missing piece of the puzzle that God is putting together using His perfect timing.
When meeting with our new team, teeth brushing was at the top of our list. When they started in February she wouldn’t put the toothpaste on the brush independently and would only briefly move the tooth brush in her mouth. Teeth brushing and dentist appointments are so gut wrenching. We always hope that this year will be easier, but end up having to go to the OR to have a cleaning, cavities drilled and teeth pulled.
Well check her out now…
Oh and by the way, the “presence” of Duff and Valarie during every ounce of home therapy has gotten us through. Let’s try and remind him of this again!!
Next up, the steps of showering!